EARLIER WORKING GROUP PAPERS AND ANALYSES
1. POLICY AND LEGISLATION
KONP Working Group’s response to Data saves lives: This paper looks at the Conservative government’s policy document Data Saves Lives: Reshaping Health and Social Care with Data (June 2022) and how it intended to ‘harness’ the potential of our health data.
For our analysis of the Health and Care Bill (before it was enacted in 2022) and how it raised new concerns for patient privacy and the sharing of our personal health data with private companies., see here.
A briefing paper on the Conservatives’ Data Protection and Digital Information Bill (2). (2023/4). Although the Bill failed when Parliament was dissolved in 2024, it shows the then government’s intention to use our personal data in re-designing the NHS and providing new opportunities for its ‘private partners’.
Digital trade is now of huge importance in trade deals, and trading rules are being influenced by multinational technology corporations that are especially keen to gain access to NHS data. See Big Tech and digital trade.
Data Saves Lives: KONP’s response to the Conservative government’s paperJune 2022 Government policy paper Data Saves Lives: Reshaping Health and Social Care with Data (June 2022) and how it intended to ‘harness’ the potential of our health data.
2. MORE GENERAL
Want to see the doctor: Prepare to cough up your data first. This article describes how GPs are now using third-party software for appointments, triaging etc, and that, consequently, many patients can only be seen if they hand over their personal data to private companies often owned y Big Tech.
AI for Good: Platforms, ethics and public value. These notes are from a webinar discussion, hosted by the Institute for Innovation and the Public Purpose, and concerned with AI development as relevant to the UN’s goals, including those for health. The notes cover discussion of the benefits but also the downsides of these AI technologies and how these might be avoided.
3. ORGANISATIONS/BLOGS
- Ambertalk monthly blog on data protection issues and training
- The Open Rights Group is a UK-based digital rights organisation that campaigns to protect our rights to privacy and free speech on line.
- MedConfidential campaigns for confidentiality and consent in health and social care. It seeks to ensure that every flow of data into, across and out of the NHS and care system is consensual, safe and transparent.
- Ada Lovelace Foundation is an independent research unit that aims to ensure that the transformative power of data and AI is harnessed in ways that maximise social wellbeing and put technology at the service of humanity.
4. DIGITAL AND DATA TERMINOLOGY AND RELEVANT BODIES